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Flor Cerebral Palsy Resources
The following is a list of resources at Children's that you may find helpful.
Complex Care Service
The CCS program provides medical care to children with genetic disorders, birth defects and chronic complex health care needs. Children with cerebral palsy can be followed from infancy to young adulthood. For more information please contact the CCS at 617-355-6162.
Clinical Genetics Program
The Clinical Genetics Program provides diagnostic evaluation for patients and families who have birth defects or developmental problems. Genetic counseling is also available for parents considering having another child. Para mayor información, llame al 617-355-6394.
The Coping Clinic
The Coping Clinic helps children with special health care needs and their families find ways to handle the extra stress associated with daily life. The staff provides evaluations, short-term therapy and family counseling. For more information please call (617)355- 6688.
El centro para familiares
The Center for Families helps parents become active members of their child's health care team. The Center provides information for families on questions they may have about diagnoses, community resources or hospital resources. For more information please phone 617-355-6279, or email ctrfam@tch.harvard.edu.
The Family to Family Program
The Family to Family Program is located within the Center for Families. It offers families support by connecting them with trained, experienced volunteer family members whose children have similar needs. For more information please phone (617)355-6279.
The Family Advisory Committee
The Family Advisory Committee is comprised of parents and children who are treated regularly at the hospital, staff members and current and former patients. The purpose is to provide the patient and family perspective needed for successful collaboration between families and health care providers. Projects include: a creation of a lecture series, creating a Family Faculty speakers bureau and publication of resource guides on specific conditions. If you are interested in joining the Family Advisory Committee please call the Centro para Familiares al 617-355-6279.
Social Work Department
El departamento de trabajo social está compuesto de diversos profesionales y programas dedicados a integrar las necesidades sociales y psicológicas de los pacientes y sus familiares al cuidado de salud. For more information please visit their Sitio Web or call 617-355-7965
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